We often remark in life that “nobody knows what goes on behind closed doors,” but without first-hand stories like these, I don’t think we really understand the extent of that sentiment. I implore anyone to read HD Heroes.
George Rainsford, actor and patron for the Huntington’s Disease Association

Essential reading for anyone affected by Huntington’s, whether carrier, caregiver, partner, or friend. Profoundly moving accounts by those with or at risk of inheriting this cruel disease.
Helen Pidd, author and North of England editor at the Guardian.

I was truly brought to tears by the authors’ courage and fortitude in finding ways to deal with the hardships and create empowerment from the difficult road HD represents—it is motivational and inspirational for all of us to read.
Leslie M. Thompson, HD researcher

HD Heroes invites the reader to become part of the HD team by having a better understanding of the impact of the disease on the real lives of those living it. The contributors here have shared their lives in a brave and open manner.
Mark Guttman MD, FRCPC neurologist and clinical researcher in HD

HD Heroes is a moving, powerful, and remarkable collection of personal stories from people affected by HD in some way. Their stories must be read by anyone interested in learning more about what makes our HD family community so amazing.
Professor Sarah Tabrizi, HD doctor and scientist

Huntington’s disease has been steeped in secrecy and fear for generations, leaving people in the community without a voice. This book changes that. Twenty-six people from nine countries bravely share their personal stories about living in the shadows of this disease. By doing so they are saying: Here I am. I will not be kept silent.

From a scientist who switched from cancer research to studying Huntington’s after finding out her mother had tested positive for the disease, to a young man whose biggest fear was testing gene negative and not inheriting the disease, to a woman who grew up in survival mode, unable to express her grief. We learn about the ways their lives are better off because of the hardships they have faced. By sharing these intimate parts of their lives, they are taking away the fear and stigma of living with HD in their families, and for that reason alone they are truly all HD heroes.

And when you read these stories, you will see that YOU are an HD hero too.

This book shares first-person stories from people who have tested gene positive, who have tested gene negative, or who have decided not to test, as well as stories from young carers, families living with juvenile HD, scientists, HD advocates, and more.

50% of the profits from the sale of this book will be donated to HDYO (Huntington’s Disease Youth Organization).

With stories from Charlie Burke, Emma Burnip, Ashley Clarke, Andrea Florian, Scarlett J. Florence, Lindsay Groot, Josh Halliday, Emma Harris, Rob Haselberg, Jenny Louise Johnson, Brandon Khoury, Sarah Khoury, Shelby Lentz, Domonique Claire Link, Dr. Tamara Maiuri, Joshua Marshall, Judy Melville, Paramjit Oberoi, Erin Paterson, Erin Pryce, Archana Ravada, Mackenzie Remillard, Gabrielle Russo, Joanne Somerville, Mandy Urbach, and Emma Wajswasser

Special contributions from Erika Boulavsky, Jenna Heilman (HDYO), Charles Sabine, and Dr. Malvindar Singh-Bains

Read more

Everything you need to know about the disease, the pandemic, and the future of COVID-19

COVID-19 For Dummies gives you reliable, up-to-date information on what COVID-19 is, how it spreads, how it can be treated, and how to manage long COVID. What is a coronavirus? What is a variant? What should we be doing to protect ourselves and our families from COVID-19 infection? This jargon-free guide answers all your basic questions. You’ll also learn the fundamentals of immunology, how vaccines work, and the types of vaccines used for COVID, as well as what we can do to protect ourselves from this ongoing spread. Expert author Edward K. Chapnick explains who is at the greatest risk and what treatments are available, so you can be confident that you have the knowledge you need to stay safe and healthy.

• Gain the knowledge to protect yourself and your loved ones from COVID-19
• Understand what vaccines are used for COVID and how they work
• Learn how to recognize and manage the symptoms of long COVID
• Discover how viruses spread, mutate, and cause illness
• Be informed about which treatments work—and which do not

COVID-19 For Dummies is a quick crash course for people with COVID-19 and long COVID who want to learn more about how to treat and manage their symptoms. Anyone who wants to know more about this new disease—without wading through all the misinformation—will appreciate this trustworthy Dummies guide.

Read more